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It’s almost December! Leaves have been raked, the turkey has been bought for Thanksgiving, and I’m getting out my Christmas decorations in preparation for switching from Autumn to Winter… I’m sort of OCD about decorations. Making the house look festive for whatever season it is is one of my favorite things. And I need the merriness of Christmas ambiance this year.
It’s been a hard year for us. Just when I thought I had gotten a handle on dealing with this autoimmune thing, I got sick on January 1st, dropped 60 lbs., and spent the next eight months going through various tests and procedures to figure out what was wrong, only to accidentally discover on my own that I was having long term side affects to one of my meds. Stopped that sucker and within three days my body breathed a sigh of relief and was pretty much back to normal. It was a long and wearing process, and we “donated” to every sort of doctor imaginable! (They, whoever THEY are, always tell you your golden years are the best. They lie. All of your “gold” is going to your doctors!!! 😦 )
In the end it all sorted itself out, but something else happened that has added another level of stress and anxiety to our lives.
In April some traumatic things happened at the store when our son Brandon works. The upshot was that it triggered something latent in him that causes him to pass out. He fainted three times at work, three trips to the ER. And in the middle of all that, his boss, who was about his best friend in the world, passed away quite unexpectedly exacerbating Brandon’s already scary issues. By then Bran was fainting at home as well. The worst time was when he fainted on the stairs and I didn’t find him till three hours later. He has also fainted while driving. That was about the last straw for me.
So he, too, has been through many heart-related tests to see what the heck is going on. But they all turned out great. We finally have a diagnoses, however. The cardiologist determined that he has Vasovagal syncope.
Vasovagal syncope (vay-zoh-VAY-gul SING-kuh-pee) occurs when you faint because your body overreacts to certain triggers, such as the sight of blood or extreme emotional distress. It may also be called neurocardiogenic syncope. The vasovagal syncope trigger causes your heart rate and blood pressure to drop suddenly.
Unfortunately it’s not a medical condition they can do much about except try to get to the root of the anxiety (which on the surface seems plain enough to me and his nibs), but in the meantime he must be very careful when he stands up and especially going up and down on stairs. And he has not been released by the cardiologist to drive. He has been on medical leave at work since May and the counselor feels it would not be a good idea for him to go back to work there. As of now he is seeing a psychologist weekly to try to help sort this out. Unfortunately it is a slow process and involves some PTSD counseling. And in the meantime, he’s still fainting. Three times in the last four days, once on the stairs again when we were not home.
His not being able to drive has complicated our lives. He’s been looking for another job for weeks now, and this morning he was offered one at the county behavioral health depart. Unfortunately he had to turn it down because there was some driving involved in getting patients to appointments, and their insurance would have seen that as a liability since he has passed out driving. Right now he’s feeling pretty useless. He is so unhappy and depressed, and feeling guilty because we are having to deal with his bills and insurance. And no matter what we say to him, we seem to be unable to alleviate his feelings about it all even though he knows we support him 100%.
Needless to say the situation has made both his nibs and me very hypervigilant 24/7. I’m finding it takes me all day to do what I could do in a couple hours around the house every day. And Brandon is a talker! So I have no personal space these days. I have been unable to concentrate to read, journal, or do a blog post, or even follow you all on your blogs. I feel like I’m losing touch with who I am. I’ve always used journaling to keep me sane. I miss it something fierce.
To that end I had to made two decisions yesterday. I bought a monthly planner that has quite a bit of space to write daily comments and notes. That is basically how I began journaling years ago. (I have 44 completed journals of all sorts!) So I’m going back to basics to see if I can find my rhythm again. The other thing is I need to stop longing to be back on the blog and feeling guilty that I can’t focus enough to do that.
So for right now I’m giving myself permission to take a “leave of absence” and stop feeling pulled in two directions about this. I know me, however, so don’t be surprised if I pop up on your blogs now and then. I so don’t want to lose touch with my friends on here. I am leaving my blog up, so if you ever want to drop me a note you can do so. I miss you guys more than I can say. You all feel like family. But in the words of someone dear to my heart,
And I expect you all to BEHAVE will I’m gone!!! ❤
Yikes! Calen. You sound like you’re handling everything as well as can be expected. It’s great that you were able to bring Bran home, though it sounds stressful. Boundaries are hard. Are they still called boundaries if they move around a lot. I know we’re not supposed to build walls, but I my shut door has been the only way I can get some me time. I tell my daughter, that I need a time out, we set the timer, put in a movie for her (I can’t wait until she can read books alone) then I shut my door.
My love to you, dear Calen!
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Hey! Good to hear from you girlfriend! I had to chuckle when I read your question: “Are they still called boundaries if they move around a lot.” Good grief! How I’d love an answer to that one. I’m living with two boundary challenged men here! Ca’t keep up with them! How are you, sweetie. Been a long time since we caught up. I’ll bet girly is pert near all grown up by now! ❤
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So sorry to hear you’ve had to go through all of this, my friend!
I wonder if the doctors have considered POTS Syndrome as the cause of Brandon’s fainting? My son has it and it causes him to get dizzy upon standing, to feel fatigued all the time, and assorted other fun symptoms. You have to find a cardiologist that is conversant with POTS, so call ahead first. They need to do a Tilt-Table Test to diagnose it.
Don’t you worry about your blog, we’ll all be here when you get back. Take care of you, and rest easy. Much love, dear heart!
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I’m so glad you mentioned that tilt-table test, Ruth! Brandon is waiting for the insurance to approve one for him. His cardiologist thought it was a very good idea. At least that way Bran will know what positions, if any, he should be aware of. Personally I think he’s always looking down at his feet when he faints. Geez, there are so many syndromes like this.
Hope you had a terrific Christmas, my dear friend! ❤
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That’s great news, Lady C! Hopefully, the cardiologist can get to the bottom of all this. It’s so debilitating to feel the way he does, and so stressful for you. Fingers crossed and prayers going up that he gets a diagnosis, and better yet, a cure. To a healthy new year, dear heart!! 🙂
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Is there a cure for that? Or the Vasovagal syncope? He won’t be going back to BB&B to work, but I can’t help wondering if the uncertainty in getting a new job will trigger the anxiety response again. Where the heck is an answer when you need one, huh? (rolls eyes…)
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Oh my goodness! Like Opher, I have been worrying and wondering. Hence my recent email to you.
What a challenging time for all of you, especially Brandon. PTSD is a bugger. It can be triggered by the most obscure things. And it sounds like his reaction is extreme. I hope the psychologist will be able to help him get his emotions back on an even keel. Other things will then start to fall into place. Blessings to all of you as you walk this current path in your life that seems to be full of twists and turns.
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Totally appreciate the blessings! Things are progressing well. He will never go back to his job. The counselor thinks that would be a huge mistake. Without that possibility hanging over his he is much less anxious. I keep feeling like this is a “detour” of some kind for him. I wonder what road he’ll end up going down…
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The path will open up when he is ready
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Well I don’t know about HIM, but the other two of us are ready!!!
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I so understand, Cheryl. It sounds like you have quite a full plate now. I am glad you have your meds straightened out but I know you still have challenges. (Loved your comment on the ‘golden’ years. Yes! I can relate!) So sorry to hear about your son. That sounds like a terribly challenging condition. I send my love and support to your whole family. I will miss you as will many others, but you need to take a pause when you need to take a pause. If you ever need to talk, contact me at luanneholder@wowway.com and I will give you a jingle. You are a good friend.
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Been meaning to drop you a note. Christmas got the better of me this year! LOL But the day was lovely and low-key as we went to Stefanie’s and she cooked. It really was a much-needed lull in the storm for me. Will drop you a note! ❤
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Be gentle with yourself. We’ll keep your seat warm. Namaste. x
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I thought I’d answered all these comments. (Shakes her head.) Your comment made me all teary, Julia. Thank you for those sentiments. And Namaste to you, too. (Did you know we have a daughter from India?)
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Thanks for updating us on what is going on in your life. Certainly is a stressing time so don’t let blogging add on. When you have time to update, we will be interested. Meanwhile you have your plate full. I do realize, however, sometimes you need to give yourself some venting time. Let us have it! 😀
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Actually I think I just needed to stop struggling with it and give it to the Lord. I feel I’ve done that now. My outlook is MUCH improved! 🙂
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Oh dear. So sorry to hear about all of this, Calen. Your family deserves a break! Take time for youself.. just go into a room and shut the door. When people know you have declared a certain time for something, they will respect it. It happened with me 6 years ago when I decided I was going to write every morning all morning and would schedule nothing during that time. People now don’t even try to schedule anything with me before 1 a.m. With a very few exceptions…
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You’re right, Judy. I need to do that. I suspect I’m not very good at setting boundaries in my life. But I sure need to. I’m feeling quite smothered here. I miss having my own space. ❤
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Well on the plus side it’s great to hear from you. I was getting worried. It is also great to hear that your own health problems are sorted. But the business with Bran must be extremely worrying. You have been through the mill. I’m so sorry for you.
But – everything passes, everything changes – things will sort themselves out. Thinking of you!!
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I am holding on to what you said, my friend. ❤
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Well, that was all pretty depressing. So sorry for all of you. I haven’t blogged in ages, so don’t feel bad about ‘disappearing’. At least you wrote an explanation.
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Hey Denise! I’ve always enjoyed your blogs. Sorry I haven’t been around lately. Are you feeling burned out, too?
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So sorry you are going through so much. Sending prayers and good thoughts while you travel this part of your journey. May the wind be on your back… may God hold you all in the palm of His hands.
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Thank you, Lindi. You’re right. Life IS such a rollercoaster journey, isn’t it. I hope you had a wonderful Christmas season. Btw, where are you located?
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You are not alone. So many people have so many problems and are so stressed. Take a break…we all need to at one time or another.
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That sure seems to have been true of so many folks in 2019. I was so glad to see the new year roll in. How was your Christmas, Beverly? ❤
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Fairly quite and simple. My son from Ga. got to come home for a few days and that was a blessing.My son who works off shore got to be home for Christmas for the first time in several years. His chidren really enjoyed that although they had gotten pretty used to having two gift days. lol
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Well it sounds like you had a full house! How wonderful that you could all be together. ❤
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Holy cow! You’ve been dealing with some heavy stuff. Sending virtual hugs!
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Got them and wove them into a blanket! 😉 How was your Christmas, my dear?
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It was very quiet! Just the husband and me.
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That’s what I like! Peace, quiet, and NO family drama! 😉
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